KiaLee Wilson is the 6 year old only daughter of Nathan and Jamie Wilson of Casper,
Wyoming. She has 3 brothers, Cruize who is 12, Jathan who is 10, and Dominic who
is 17 months old. She is a very outgoing little girl who loves to be active all
the time. She loves to do beauty pageants, wrestle with her brothers, color, draw,
paint, and anything that has to do with outdoors.
On August 8th, 2011 KiaLee was diagnosed with stage 5 Renal (kidney) Disease. She
has had some health issues since the day she was born, but we never knew of her
kidney issues. When born, KiaLee was a month overdue, and had no amniotic fluid
surrounding her. She had a bowel movement while in the womb, and inhaled the meconium
which went into her lungs. Because of the lack of fluid to support her, her head
sat on the pubic bone with nothing to support it for a month. Her umbilical cord
was wrapped around her neck twice, and was choking her.
She was placed on oxygen for 3 days. She had an ear tag, which is just a extra piece
of skin that they tied off, and it fell off within a week. She had a feeding tube
in her nose and belly button, and IVs out of her head and hands. Upon taking x-rays,
they then discovered that 2 of her ribs weren't attached and were just floating,
and 4 vertebrae didn't fuse over the spine. She has been seeing a neurologist every
6 months since the day she was born to watch this problem.
Luckily the ribs connected on their own, and 2 of the vertebrae fused on their own.
Unfortunately 2 did not. This was diagnosed as Upper Thoracic Kyphosis Secondary
to a Vertebral Segmentation Anomaly and Thoracic Hemivertebrae. There is a great
chance that this will have to be fixed thru surgery at a later time. After addressing some concerns at a regular check up with our family Dr. in Early August 2011, he sent us to get some blood work done to check all KiaLee's organ functions. Two days after the appointment, we got the call that he wanted us to
see a kidney specialist in Denver.
Two days later we were sitting in the office
of Dr. Hanna being told about our daughter's stage 5 kidney disease that she was
born with. None of the Doctors here caught this problem, and it was like a kick
in the face. After that appointment, they wanted us to see all kinds of specialists.
A bladder specialist, asthma and allergy specialist, food nutritionist, Social workers,
and then the neurosurgeon in Colorado. They proceeded to do an MRI of her spine
and found that KiaLee had what is called a Tethered Spinal Cord, and a slight case
of Scoliosis. On November 15th, 2011 she had her first surgery on her spine. Her
surgery went great, and she healed wonderfully.
After several appointments, tests and trips to Denver, KiaLee was finally approved
to be placed on the Kidney Transplant list on December 27th, 2011. Now we just go
to her appointments, and wait for that call that they found a match. We are very
hopeful that this will happen soon, and are very thankful for all the support and
prayers that we have received from our community. It's the people that we have in
our lives that are here supporting us emotionally, physically, finacially, and all
around that have really helped us make this as smooth and understanding as possible
for KiaLee. We are so thankful for everyone that has been there for us, and will
be in the future.
Thank you all, and may God bless every one of you.
Sincerest Thanks, and Lots of Love,
The Wilson Family. (Nathan, Jamie, Cruize, Jathan, KiaLee, And baby Dominic).